NIPDP Data Dialogue Reports

Perceptions on the use of Northern Ireland Health and Social Care Data

Summary Report

A ‘data dialogue’ is the NIPDP approach to deliberations on topics related to data use. Using a deliberative approach panel members participate in discussion and activities to consider opinions and views on a given subject. With the support of facilitators, they collectively explore information they have been provided with, along with their own experiences and views related to address specific questions on the use of data for public good.

The Panel was provided a definition and scope of what Health and Social Care Northern Ireland (HSCNI) is, to provide scope and context for their discussions. They first examined three case studies, reacting without prior knowledge or discussion, identifying issues and points of interest. Later the Panel revisited these case studies to assess if their views or feelings had changed following their deliberations and discussion activities to capture their perspective on use of Health and Social Care data based on common general themes from published works.

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Case Study Insights

The Panel were provided a definition and scope of what Health and Social Care Northern Ireland (HSCNI) is, to provide scope and context for their discussions.

Using Health Data for Population Research

Panel members were generally comfortable with using HSC data for population research, as long as it remained de-identified and securely managed.

Key panel perspectives from case study reviews

The panel deliberated and contextualised in their perceptions of use of data from Northern Ireland Health and Social Care drawing from published insights into known public attitudes of data usage.