Rare Disease Focus: supporting rare disease throughout all communities | Rare Disease Focus: supporting rare disease throughout all communities

EURORDIS Black Pearl Awards – Photo Contest

Early Career Researcher Award in PPIE

Insights into the length and breadth of methodologies harnessed to study human telomeres

12 November 2024

Get Me Active Campaign

National recommendations for the management of children and young people with IgA Vasculitis

30 September 2024

Understanding the Journey from the Womb to Obtaining a Rare Genetic Diagnosis in Children.

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Rare Disease Research Conference 2025 CALL FOR ABSTRACTS

7/02/2025 @ 5:00PM - 5:00PM

Online submission

Rare Disease RAREiTEA at Bangor Castle

19/02/2025 @ 7:30PM - 9:30PM

Bangor Castle Castle Park Road Bangor BT20 4TF

LifeArc Translational Science Summit on MND and Rare Dementia

5/03/2025 @ 9:00AM - 5:30PM

In person Kings Place, London

Helium Arts - Distance Creates Online Spring Saturdays

8/03/2025 - 12/04/2025 @ 12:01PM - 12:01PM

Rare Disease Research Network Webinar 1

31/03/2025 @ 12:00PM - 1:00PM

Rare Disease Research Network Webinar 2

2/04/2025 @ 12:00PM - 1:00PM

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Welcome to our Rare Disease Focus

Raising awareness & supporting rare disease throughout all communities